Twelve years have passed since the first surgery that brought me to where I am today. That's enough time to learn to function with pain, but not always enough to stop feeling it — both in the body and in the emotions that accompany it. Despite working on myself and using methods that support the nervous system, there are still moments when the body and memory summon what was hardest.
This usually happens when facial pain triggers memories. They aren't always clear images. Sometimes it's just tension in the body, a familiar tightness inside, a sudden wave of unpleasant thoughts. Only after a moment comes recognition: this is a return to those times.
I return then to the moment I was told that nerve regeneration could take up to ten years. That memory triggers intense tension and anger. I start analyzing myself and my reactions from the appointment: "Did I say everything that was important?", "Did I ask the right questions?", "Did I make a mistake — should I have done more?"
Then comes a wave of fear, bringing memories of the first days in the hospital after being poisoned by Tegretol, and the whole-body pain so severe that the only relief seemed to be sleep from which I might never wake. With that memory come automatic thoughts: "What if the doctors hadn't helped me?", "How could I have felt so terrible for so long without seeking help, pretending I could handle it, that I was strong?"
There's also an image of myself sitting on the couch, curled up and crying — years after the diagnosis and medication poisoning, after years of living with pain, exhausted, helpless, and searching for answers that no one could give. That's when sadness, grief, and a sense of loss appear.
These reactions are not a choice. They sometimes appear faster than thought, rooted in a body that remembers. And this experience clearly shows how tightly pain and emotions are intertwined. The body doesn't just feel suffering — it memorizes and replays it, and emotions are part of that process.
Emotions are not the enemy
Over time, I begin to understand that these emotions are not signs of weakness or steps backward. They are a natural response from a body that functioned under overload and threat for a long time. They are information about what was difficult, what exceeded my capacity, what still demands to be seen.
Although they still appear, I'm learning to relate to them differently. Instead of fighting them, I try to recognize and name them. Instead of suppressing them, I try to notice where they show up in the body. Instead of judging myself, I look for understanding and gentleness in the experience.
Pain never comes alone
Those of us living with chronic pain discover very quickly that pain never arrives alone. It comes with tension, fear, exhaustion, sometimes with an inner despair invisible from the outside. The body hurts, but so does what surrounds the pain: others' lack of understanding, loss of former freedom, limitations that must govern daily life. Emotions are not an addition to suffering. They are part of it.
And yet they should not be viewed as an enemy. If a person could think and act but couldn't feel, their life probably wouldn't even begin. Emotions help us learn about the world. Without them, we wouldn't feel fear of danger or joy in the presence of another person. Without emotions, life would be empty — they give it meaning and color.
For someone with chronic pain, this truth is particularly hard, because many emotions become more intense, more exhausting, and more physical than before.
What emotions actually are
Psychology describes emotions not as mere "feelings" but as complex processes involving body and mind. An emotion is a combination of physiological reactions, thoughts, interpretations, sensations, and behaviors. That's why fear isn't solely the thought "I'm afraid" — it's also muscle tension, quickened breath, dry mouth, vigilance, readiness to withdraw or defend. That's why sadness isn't just a psychological shadow — it may manifest as heaviness in the body, slowing down, lack of energy, a need for solitude.
In chronic pain, this connection between body and emotions becomes exceptionally clear. Every emotion leaves its trace in the body, and every pain flare reflects in the psyche.
The emotional landscape of chronic pain
Fear is one of the most common emotions accompanying chronic pain. It doesn't always take the form of panic. More often it's a vague but persistent feeling. Fear of the next day, of sudden symptom escalation, of insomnia, of helplessness, of dependence on others. It's also fear of losing yourself — the version of yourself that was capable, active, independent, present.
Anger appears alongside fear. Anger at a body that won't cooperate. Anger at doctors who don't understand. Anger at people who say "you look fine." Anger at yourself for having to cancel plans again, lie down, go quiet, give something up. It's justified anger, but difficult, because many people with chronic illness have learned they're not allowed to show it.
Sadness is there too — not the momentary kind, but deep, connected to loss. Chronic pain takes things both small and large: spontaneity, plans, the lightness of morning, the ability to focus, the sense of safety. A person in pain says goodbye to themselves piece by piece. And they have the right to grieve this.
Frustration from comparison is another painful mechanism. We watch people who can work without limits, plan without fear, sleep peacefully. The comparison generates questions: "Why can they and I can't?" From this thinking, feelings of inferiority, guilt, or shame easily arise. Yet comparison almost never leads to relief. Most often it only magnifies suffering.
Mindfulness as a path forward
This is where mindfulness appears — a specific skill of noticing what is happening in the body and mind before the reaction takes full control. It begins with a simple act: stopping. From asking: "What am I feeling now?", "Where is this in my body?", "Is this a fact or a fear-based interpretation?"
Such observation doesn't remove pain in one stroke, but it creates space between stimulus and response. In that space, freedom begins.
Living with chronic pain, we can't always stop the pain itself, but we can gradually learn a different way of relating to it. We can notice that tension amplifies suffering. We can see that catastrophic thoughts escalate fear. We can recognize that the body has just entered alarm mode. We can consciously relax the jaw, deepen the breath, pull attention away from the spiral of worst-case scenarios, return to the present.
Rebuilding the relationship with your body
In chronic pain, the body often becomes foreign. We treat it like an opponent, a source of betrayal, something that fails, interferes, and limits. Yet without rebuilding the bond with the body, it's hard to recover even a little inner peace. The body is not only a site of pain. It is also a site of signals, boundaries, needs, and possibilities. It warns, but it also suggests. It says when to rest, when to slow down, when something exceeds our resources.
This doesn't mean romanticizing suffering. Chronic pain doesn't automatically ennoble anyone. It can destroy a day, relationships, a sense of safety. But precisely for that reason, it's important not to add another layer of violence: self-criticism, comparisons, constant self-judgment. A person in pain doesn't need another whip. They need compassion — including from themselves.
Practical steps
In practice, this sometimes means very simple things:
- Instead of "Why can't I manage again?" — ask "What do I need right now?"
- Instead of "Others function normally" — say "My situation is difficult and I have the right to seek a gentler path"
- Instead of fighting every emotion — learn to recognize it: "this is fear," "this is anger," "this is despair," "this will pass, even if it's intense right now"
Naming an emotion often weakens its power.
It's also worth remembering that living with pain, we still have space inside for positive emotions: tenderness, gratitude, relief, wonder, laughter, peace, closeness. Chronic pain doesn't take away the ability to feel good — though it sometimes heavily obscures it.
We are not our emotions
We are not our emotions, just as we are not solely our pain. We experience them, but they do not exhaust our entire identity.
Distinguishing these experiences can be the beginning of reclaiming yourself. Because although pain can occupy enormous space, it doesn't have to become the only language of life. Alongside it, there still exists awareness, choice, connection, meaning, tenderness, and inner presence. Emotions don't have to take the wheel — they can become information. The body doesn't have to be exclusively a battlefield — it can be a map showing us something. Even a life constrained by suffering can hold depth.
I'm curious how it is for you. When difficult emotions arise, do you fight them or do you give them space to pass?
Reference:
*Psychology and Life* — P.G. Zimbardo, R.J. Gerrig
Natalia — since 2014 I've been living with trigeminal nerve pain. I write in plain language, based on reliable sources and personal experience. Read my story →
Frequently Asked Questions
Does alpha-lipoic acid (ALA) help with neuropathy?
Some people use ALA as a supportive supplement, but evidence is limited and comes mainly from studies on diabetic neuropathy. It is considered a supplement, not a proven therapy. Always consult your doctor.
Which doctor should I see for facial pain?
First, see a neurologist. If surgery is being considered, a neurosurgeon. If a dental cause is suspected, it is also worth ruling it out with a dentist.
Can trigeminal neuralgia be cured?
In many people, pain can be effectively controlled with medications or procedures, and MVD provides the most durable results in eligible patients. The course varies — with periods of remission and relapse. Decisions are made together with your doctor.
What is guided imagery and can it help with pain?
Guided imagery (visualization) is a relaxation technique where you use imagination to mentally visit a calm, safe place. Research shows it can lower stress, calm the nervous system, and reduce pain perception — especially helpful for chronic facial pain.
Can chronic pain affect memory and concentration?
Yes. Research shows that chronic pain, including trigeminal neuralgia, can lead to measurable changes in brain function — affecting memory, attention, processing speed, and executive function. This is sometimes called 'brain fog' and has a real neurobiological basis.
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